Do I dare be hopeful ?

So far the long headache is in check. We are both afraid to declare victory, and Dr Oro said I lost a significant amount of CSF and expected me to have a CSF headache, but so far the headache itself is way down and though we don't want more disappointment, so far so good. I can probably go home tomorrow. TTYS. Sharon

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A day in bed

The day was long and boring with Sharon restricted to lie flat in bed. The nurses were wonderful, and kept her fluffed and rolled, and kept the pain at bay pretty well. This hospital ranks up there with the very best, in Bobby's opinion. The day was long and boring, and there fore the video is too.

Tethered cord no more.?.?.?

Sharon underwent surgery to disconnect her spinal cord from it's connection to lumbar 2 via a small band known as the filum terminale. Her film terminale is terminated. Snipped. Fine'. There was a considerable amount of snapback, indicating that there is a GOOD chance that the underlying cause of her brain stem elongation is no more, or at least reduced. Now to wait and pray. She was just out of recovery when I saw her briefly around 9:30 pm.

Posted by Bobby, the husband at 1:42 am Denver time.

Ps, thank you so much aunti Do for the ride, and to mom, dad, Katie, and my sister for being there. Love you all. Thank you to the greater Chiarian Family. We love you all as well.

Counting Down the hours

Today I:
Had an eye exam
Ordered new glasses
Saw Dr. O and signed consent
Did pr e-registration at the hospital
Had blood work
Packed over night case; and
Met a very sweet lady from Oklahoma who will be on Dr. O's table just before me tomorrow.

I think I am finally ready.
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Surgery - Round 3

So I saw world famous Dr. O yesterday. My brain has shifted into the space made last year basically absorbing all the room created to allow free fluid flow. Doc says this is not too much to worry about in itself as there is less brain compression.

After my 1st flow study and 12th or so MRI, the word is more surgery. This time for Tethered Cord. As with many things he has developed a method of his own. The incision should be only about 1 1/2 inches long. Just about 3 days in the hospital, luckily here in my home town.

It has been a very long day so that is all for now, but I will try and post more in the next few days.