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Tuesday, June 3, 2008

Trailer



Posted by Sharon (aka Sitting Porcupine) at 11:54 AM 0 comments Links to this post
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Today Sitting Porcupine is feeling.....

Free Smileys & Emoticons at Clipart of.comFree Smileys & Emoticons at Clipart of.com

Things that made me cry,,or laugh...or both....

  • Interview with God

My Zipper - 2 days Post Op

My Zipper - 2 days Post Op

Head Saga the Movie - Starring Me :-) Parts I, II and III





If You Could Read My Mind Lyri

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Please..Won"t You......

Slideshow

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Diagram of Fusion Surgery

Diagram of Fusion Surgery

X-Ray after fusion

X-Ray after fusion

MRI View 1

MRI View 1

MRI View 2

MRI View 2

Folks new to blogging - Read this first.

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To just say "hi" go to the chatterbox.

Early posts were done by my rock (also known as my dear husband (DH) Bobby).


About Arnold-Chiari Malformation

Arnold-Chiari malformation (ACM) is a condition where the brain stem (the part of the brain which controls involuntary body responses such as the heart beating and breathing; compression of the cranial nerves; and disruption of the flow of cerebrospinal fluid) herniates into the space normally occupied by the spinal column.
Symptoms can range from chronic to acute headaches, dizziness, tinnitus, incontinence, foot drags, extremity weakness and all types of "strange" pains and "feelings" all over the body. Often misdiagnosed as MS, or other neurological diseases, some AMC's symptoms can be kept at bay with meds, these treatments are far from a "cure". Many times individuals with ACM are also afflicted with hydrocephalus, syringomyelia, seizure disorder, scoliosis, tethered cord syndrome, craniocervical instability, and Ehlers-Danlos syndrome.

Sharon"s story

On a typical November evening 2002, I got a bad headache at dinner time. It has never gone away. In January 2003, I was diagnosed with cranial settling or basilar impression. In 2006 I was diagnosed with EDS. With each successive diagnosis, DH and I were more and more devastated. We were told I would have to undergo risky brain surgery some day. That day arrived on June 12th 2007.

Saga of life with Chiari after the endless headache began

My Photo
Sharon (aka Sitting Porcupine)
Diagnosed with Scoliosis (age 14), Basilar Invagination/Retroflexed Odontoid, Platabasia, Ehlers-Danlos Syndrome, herniated disk(C6-C7),Chiari Malformation 1 and Obstructive Sleep Apnea. Although I am not Native American, a dear Cheyenne friend gave the name of "Sitting Porcupine" after I related to her the story of how the 1st porcupine I had ever seen sat in the road in front of my truck and would not move.
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Blog Archive

  • ▼  2008 (13)
    • ▼  June (1)
      • Trailer
    • ►  May (5)
      • Do I dare be hopeful ?
      • A day in bed
      • Tethered cord no more.?.?.?
      • Counting Down the hours
      • Surgery - Round 3
    • ►  March (4)
      • Shout Out for DH
      • Do's and Don'ts
      • New Job
      • Working World Ready for my Return ?
    • ►  February (2)
      • I Was "Tagged"
      • Was the zipper worth it?
    • ►  January (1)
      • I'm Baaaaack!
  • ►  2007 (29)
    • ►  October (6)
      • Life goes on..
      • Things that get me thru the day.....
      • Who couldn't use a positive distraction???
      • Trying To Move On
      • Goodbye Dad
      • Back to Work - sort of
    • ►  September (2)
      • Am I just the sum of my diagnosis?
      • WHAT IS WRONG WITH WANTING NORMAL?
    • ►  August (2)
      • LET THERE BE SPACE!
      • For the first time y'all are hearing from me direc...
    • ►  July (6)
      • Babinski Shminski
      • Switched sides
      • Gone fishing
      • The follow up
      • Happy fourth of July
      • My central line girls
    • ►  June (13)
      • Signs Of Hope
      • HOME
      • The days are melting together
      • Slow but sure
      • LITTLE BY LITTLE
      • Going home-coming back
      • BACK TO THE HOSPITAL!!
      • The bad owie
      • The healing
      • Surgery Day
      • Surgical posterior fossa decompression
      • The big haircut
      • Step two

Cluster map - Shows locations of folks who visit headsaga

Locations of visitors to this page

Links

Chiari Blogs

Too Much

Lace

Mylee

Rain

puglet

Loud

Big

Glory

Jenn

Traveling

Caroline

Leslie

Dee

If you found me, these are worth your time as well:

  • Chiari & Syringomyelia Wear - Help find a cure
  • The famous Dr. O - one of my angels
  • Christinas Bookshelf - a Christian's woman's look into life with EDS
  • Never that easy

Read more on Chiairi.....

  • Chiari Connection International
  • Basilar Invagination - Cedars-Sinai

Video of Chiari surgery (WARNING-GRAFFIC CONTENT)

  • CLICK HERE